When expectant parents learn their child will be born with Down syndrome, they invariably have questions about what this diagnosis will mean for their son or daughter and for the rest of their family. When will their child be able to walk, to speak clearly, to care for most basic needs? Will he or she be able to hold a job, to live or travel independently? A new study from investigators at MassGeneral Hospital for Children (MGHfC) and colleagues in the Netherlands is providing answers to some of those questions.“More and more parents are opting for prenatal testing during their pregnancies, and if they learn about a diagnosis of Down syndrome, they want to know real-life answers to such questions,” says Brian Skotko, the Emma Campbell Endowed Chair on Down Syndrome at Massachusetts General Hospital (MGH), director of the MGH Down Syndrome Program, and senior author of the study published online in American Journal of Medical Genetics Part A. “Contrary to some public beliefs, people with Down syndrome never stop learning, and functional skills can still be attained and improved well into adulthood.”While previous studies have looked at the development of specific skills by people with Down syndrome, most of them have been small, and several were based in countries where limited support services can restrict the potential of children with Down syndrome. The current study combines the results of surveys taken of more than 2,600 families in the U.S. and the Netherlands.The U.S. survey, sent in 2008 and 2009 to families involved with six nonprofit Down syndrome organizations across the country, asked parents to rank their child’s functional abilities in 11 areas — walking, eating, speaking, grooming/personal hygiene, reading, writing, preparing meals, working at a job, dating, traveling independently, and living independently. They were also asked whether their child had significant health problems or educational/learning difficulties. The same questionnaire — with some subtle differences due to translation from English into Dutch — was administered online in mid-2016 to families recruited through the Dutch Down Syndrome Foundation. For both groups, the family members with Down syndrome ranged from younger than 5 to older than 40, with the largest numbers in the youngest age groups. “Contrary to some public beliefs, people with Down syndrome never stop learning, and functional skills can still be attained and improved well into adulthood.” —Brian Skotko From the standpoint of major functional milestones, the results indicated that most people with Down syndrome in the U.S. could walk by 25 months of age, speak reasonably well by age 12, maintain personal hygiene by 13, and work independently by 20. By the age of 31, 49 percent were reading reasonably well, 46 percent could write reasonably well, 34 percent were living independently, and around 30 percent could travel independently. Dutch parents reported largely similar results. In both groups, learning challenges were reported more often than health problems, and reports of serious health problems in individuals with Down syndrome increased as they grew older. An associate professor of pediatrics at Harvard Medical School, Skotko said, “Now we have guideposts — based on the responses of thousands of parents — that can help clinicians know when children may be falling behind their peers with Down syndrome and, when necessary, refer parents to additional supports, resources, and therapies.” He also notes that recent advances in social, educational, and medical supports for people with Down syndrome should lead to even greater improvement in the acquisition of functional skills.Skotko added, “Here in the U.S., there have been ‘wrongful birth’ and ‘wrongful life’ lawsuits filed either by parents of children with Down syndrome or on behalf of the children themselves, claiming that parents were not given information allowing them to terminate a pregnancy or that the child is living a life of suffering. These headline-grabbing lawsuits center around basic questions, such as what a person with Down syndrome can reasonably be expected to achieve. Such discussions should be centered around accurate information, rather than wild, outdated speculation, and we hope our research will help give clearer answers to those questions.”The lead author of the American Journal of Medical Genetics Part A paper is Gert de Graaf of the Dutch Down Syndrome Foundation; additional co-authors are Susan Levine of Family Resource Associates in Shrewsbury, N.J., and Richard Goldstein of Boston Children’s Hospital.The study was supported by grants from the Fred Lovejoy House-Staff Research and Education Fund, the Joel and Barbara Alpert Endowment for the Children of the City, the Tim White Foundation, and the Harvard NeuroDiscovery Center.
1SHARESShareShareSharePrintMailGooglePinterestDiggRedditStumbleuponDeliciousBufferTumblr,John Pembroke Since joining CUES in March 2013, John Pembroke has played a leadership role in developing and launching a new direction in CUES’ strategy, branding and culture. Under his guidance, CUES … Web: www.cues.org Details In our industry, we talk a lot about “table stakes”— things that credit unions have to do just to be in the game.For example, many credit unions offer a mobile banking app. Although they may never get an award for having the very best one out there, they know having a pretty good one is table stakes for members doing business with them. On top of this, many credit unions take extra steps—such as providing exceptional service and getting deeply involved with their communities—to ensure they’re off and running toward building a solid brand.How credit unions can effectively recruit, retain and reward top talent runs parallel to this payments example. While credit unions can’t offer their executives the lucrative stock options or the premium salaries that big banks do, CUs can and must get the table stakes of compensation right—and then take some key extra steps to create a culture that demonstrates that top talent is valued highly.Getting the table stakes of compensation right includes confidentially sharing your CU’s current compensation data in the CUES Executive Compensation Survey and the CUES Employee Salary Survey. Both are open for participation through March 31.These compensation surveys report key data credit unions need to help them offer competitive compensation that will attract and retain qualified professionals. The executive survey features questions related to wage, bonus and benefits information for 21 leadership roles; the employee survey focuses on pay range and actual wages currently paid for a wide range of staff positions.“Credit unions that participate help by giving the industry valid data to rely on,” says Laura Lynch, products & services manager at CUES. “And, credit unions that access the results will have credible data to use to make sure their compensation packages are competitive—which is especially important right now, given today’s tight job market.”Because getting compensation right is so important, CUES sweetens the pot and gives a 20% discount to credit unions purchasing the survey results if they contributed data during the participation period—and CUES Unlimited+ members get access to compensation reports at no cost. Plus, CUES makes it easy for credit unions that have previously participated to update their information.I encourage you to participate now and later get the data from our executive and employee surveys. Then take some extra steps to ensure your compensation offerings in 2020 and beyond help you build the best possible team in your shop.For example, credit unions that want to go the distance in this area can put in place a supplemental executive retirement plan. These plans, including those offered by CUESolutions platinum provider CUNA Mutual Group, are designed to help recruit, retain and reward CEOs and other key executives. Another option is to be proactive in managing the costs of offering outstanding benefits to all staff, such as by establishing a pre-funding program.In all, when your credit union takes care of the table stakes and then the extra steps that will create an outstanding compensation program, both your organization and its members will benefit.
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National Disaster Mitigation Agency (BNPB) spokesman Agus Wibowo says that the number of confirmed COVID-19 cases the central government has been publishing did not match the figures that regional administrations were reporting.Agus said on Sunday during a virtual discussion with the Energy Academy Indonesia that the BNPB had been collating reports from both the Health Ministry and regional administrations in its work behind the scenes, and claimed that he did not understand the reason for the discrepancy in the data.“BNPB gathers data from the regions and the Health Ministry. We compare them. But because the [government] spokesman is Pak Yuri, we publish what he reports,” Agus said, referring to Achmad Yurianto, the Health Ministry’s disease prevention and control director general.Agus confirmed a lack of data transparency from the central government, saying that the data the BNPB received from the Health Ministry was limited.“We have been fed limited data from the Health Ministry, so we have not been able to provide complete or [transparent] data,” said Agus.Read also: KawalCOVID-19 volunteers call for regional quarantines as crisis looms“I just found out that what the Health Ministry reports to the WHO [World Health Organization] is complete, with the case gender, age and [medical] status. I’ve only just been made aware that such data [exists],” he said.Agus said that the disaster agency was currently developing the Lawan COVID-19 (fight COVID-19) application, which would gather data on confirmed cases from around the country and be made available in the coming week.“We are mobilizing many personnel from the BNPB and BPBDs [Regional Disaster Mitigation Agencies], also the military and the police, for data input that will connect to the application,” he said.KawalCOVID-19 community group initiator Ainun Najib, who also participated in the discussion on April 5, said that the government needed to be more open about the outbreak on Indonesian shores, fearing that inaccurate data that did not reflect the reality might catch the public off guard.Read also: COVID-19: Anies slams Health Ministry’s requirements for large-scale social restrictions“People could perhaps think [that cases] have declined,” Ainun said.Jakarta Governor Anies Baswedan earlier cast doubt on the central government’s data, saying that the capital had buried more than 400 Jakartans according to COVID-19 protocol.West Java Governor Ridwan Kamil also suggested that the number of confirmed cases in his province was exponentially higher than the central government’s published figures.During a teleconference with Vice President Ma’ruf Amin on Friday, Ridwan said that the government’s official count reported only 225 confirmed cases in West Java on Friday, but that his administration’s rapid testing program had identified 677 new cases. By Sunday, Indonesia’s COVID-19 epicenter of Jakarta had recorded 1,124 confirmed cases and 95 deaths, followed by West Java with 252 confirmed cases and 28 deaths.Topics :
Scientific Beta has redirected to draft benchmark-related rules prepared by the European Commission the strong criticism it previously expressed of the proposals developed by the technical expert group (TEG) that has been advising the EU executive on sustainable finance.The draft rules in question are the so-called draft delegated acts on minimum standards for EU climate benchmarks and disclosures about environmental, social and corporate governance (ESG) factors in benchmarks.The Commission published the draft rules last month with a call for any feedback to be submitted by tomorrow.Scientific Beta yesterday shared the letter it sent to the Commission, with CEO Noël Amenc in a press release explaining the smart beta index provider’s view that the Commission’s proposal “does not go in the right direction and our previous criticism of the proposal from the TEG remains relevant for the most part”. “This regulation makes the weights of stocks depend more on their stock market performance than on their ecological performance”Noël Amenc, CEO of Scientific Beta“In very concrete terms,” said Amenc, “the new carbon metric will allow a company that has a better stock market performance than the market average to participate proportionally more in the emission of greenhouse gases than others.“Ultimately, this regulation makes the weights of stocks depend more on their stock market performance than on their ecological performance,” he claimed.In its letter to the Commission, Scientific Beta said that a recent spike in the carbon intensity of benchmark products launched in anticipation of the final EU rules “richly illustrated” its point that the rules on the table would introduce capital market instability to the assessment of decarbonisation.An equity market downturn would potentially trigger “portfolio adjustments most unconducive to setting long-term decarbonisation incentives for issuers,” it said.Scientific Beta’s “remedial” proposals are for the rules on the EU climate benchmarks to “giv[e] administrators flexibility in sector allocations while neutralising sector effects to assess decarbonisation”, to use the “standard” version of carbon intensity and “to incorporate important value-chain considerations with metrics of sufficient granularity”.According to Scientific Beta, the version of the weighted average carbon intensity metric (WACI) taken up in the draft delegated act has not gained wide acceptance.The Task Force on Climate-related Financial Disclosures has so far recommended asset managers and asset owners use the weighted average carbon intensity metric with revenues, not enterprise value, as the denominator.The Net Zero Asset Owner Alliance, however, departed from this when it recently indicated a “preference for footprint intensity normalisation rules based on enterprise value”, including in part to achieve some consistency with the EU climate benchmarks.Scientific Beta’s scathing criticism of the TEG’s proposals generated a vehement counter-argument from a member of the expert group.Benchmark ESG explanationsAnother of last month’s draft delegated acts is aimed at supplementing a new requirement to explain in the benchmark statement how environmental, social and governance (ESG)-related disclosures should be provided.Scientific Beta said the Commission “should be commended for reducing much of the conceptual confusion of the TEG proposals, and considerably improving the informational potential of proposed disclosures”.However, in its view, the Commission’s proposal was still in need of being fixed, because it would impose “extensive and expensive sustainability disclosures” and risked providing regulatory endorsement to metrics “whose divergence frustrates the possibility of meaningful comparisons and is a hindrance to decision-making in matters of sustainability”.Scientific Beta had already suggested as a solution that an administrative body be tasked with making available the data to be used by benchmark administrators to produce mandated ESG-related disclosures.In its letter to the Commission it fleshed this out to say that the body it envisaged was something similar to the ethics councils supporting Sweden’s buffer funds and Norway’s sovereign wealth fund, in that it would look after controversy assessments in addition to “objective data”.ESMA last week issued a “no-action letter” to national supervisory authorities in relation to the ESG benchmark disclosure rules because the relevant delegated acts were not ready.A spokesman for the watchdog has since confirmed it was the first time it used its power to issue no-action letters, which it obtained under a revised regulation that stemmed from a review of the European Supervisory Authorities.Read moreClimate benchmarks: Brown to greenBrown to green – Index providers are making the first steps towards adoption of the new EU climate benchmarksTo read the digital edition of IPE’s latest magazine click here.This article was updated to specify that the carbon intensity measure recommended by the TCFD for asset owners and asset managers has revenues as the denominator. “Even though we have planned to provide versions of our flagship indices that will comply with these standards, which will be a business opportunity for us, we will not recommend that our clients adopt these indices,” he said.“Scientific Beta was set up by an academic institution to advance state-of-the-art equity investing based on scientific ethics and we believe that it is our duty to highlight the flaws and risks that this draft regulation poses for the fight against climate change.”Scientific Beta said it would also be writing to the European Council and the European Parliament.A spokeswoman for the European Commission confirmed it has received Scientific Beta’s letter, but that she could not say more at this stage.“We will analyse their contribution, as well as the contributions received by other stakeholders, in view of our reflection and work around these draft delegated acts,” she said.In the explanation of the delegated act about the minimum standards for the EU climate benchmark categories the Commission said the requirements laid down “maintain a certain degree of flexibility in the design of the methodology of benchmarks, in order to allow room for the market to develop innovative strategies and adapt to the specific need of investors”.There has been strong appetite for the new categories of EU climate benchmarks – EU Climate Transition Benchmarks and Paris-aligned Benchmarks – among index providers, with many launching concept products in anticipation of the regulatory regime being finalised.Carbon metric concernsWith regard to the proposed requirements for the minimum standards, Scientific Beta reiterated the issues it has with the proposed carbon intensity metric for assessing decarbonisation, namely its calculation based on enterprise value rather than revenues, and the inclusion of value chain or Scope 3 emissions.
Ripley County, In. — Two people were killed in a crash on State Road 129 near Mud Pike in Ripley County Sunday night. Indiana State Police say around 9 p.m. a car driven by Amanda Shadday, 34, of Batesville, was northbound on Sttae Road 129 when she crossed the centerline into the path a another car driven by Tracy Lipps, 61, of Osgood. Shadday was declared deceased at the scene. A passenger in the Lipps vehicle, Ralph Lawson, 64, of Virginia also sustained fatal injuries. Lipps was flown to University of Cincinnati Hospital with serious injuries.
February 6, 2018 Police Blotter020618 Decatur County Fire Report020618 Decatur County EMS Report020618 Decatur County Jail Report020618 Decatur County Law Report020618 Batesville police Blotter
Batesville, In. — The Batesville Christian Church invites the public to the 2019 Batesville Easter Egg Hunt at the Batesville High School football field on Saturday, April 13, 2019. Gates open at noon for registration, games, door prizes, and pictures. Age-specific Egg Hunts start at 1 p. m.
Vaping will soon be against the law in places of work in the Sunshine State.As the weekend started, Governor DeSantis signed into law SB 7012, the law which officially implements “Amendment 9,” approved by voters last November.The law takes effect on July 1.It includes the following:-Adds vaping to the ban on people under age 18 smoking tobacco within 1,000 feet of a school-Sets a fine for violating the ban to at least $250 and up to $750 for a first offense, and at least $500 up to $2,000 for each additional offense-Requires that all fine money collected from vaping offenses be put toward children’s medical services programsThe law does still allow vaping in standalone bars, and vape and tobacco shops, as well as in designated hotel rooms and airport lounges.The bill recently passed both the House and the Senate unanimously.
GUYANA’S international umpire Nigel Duguid has been chosen by the International Cricket Council (ICC) as one of its match officials for the upcoming ICC Under-19 Cricket World Cup scheduled to get underway in New Zealand from January 18.It marks the second consecutive World Cup appearance for Duguid who also stood in the 2016 tournament in Bangladesh.Duguid joins Barbadian Gregory Brathwaite as the other regional umpire on the international panel which includes Robert Bailey, Anil Chaudhary, Shaun George, Shaun Haig, Mark Hawthorne, David Odhiambo, Buddhi Pradhan Ranmore Martinesz, C.K. Nandan, Ian Ramage, Ahsan Raza, Shozab Raza, Tim Robinson, Langton Rusere and Paul Wilson.The former Georgetown Cricket Club (GCC) left-arm spinner who gave up playing for an umpiring career in 2010, was appointed to the ICC TV Umpires panel the following year and has been officiating in regional matches ever since.Duguid officiated in his first T20 International, featuring West Indies and Ireland on February 21, 2014 and has done five matches to date. He also stood in his first One Day International (ODI) on March 5, 2017 when West Indies opposed England and has done three more games since. He is also among the umpires in the Caribbean Premier League (CPL).Duguid also had a stint in the English cricket season in 2012 after doing duties in the Bangladesh ‘A’ team tour of the Caribbean the previous year.Apart from them, David Odhiambo, Buddhi Pradhan and Ian Ramage from the ICC Development Panel will also be officiating in the tournament.Jeff Crowe of the Emirates Elite Panel of ICC Match Referees, and Devdas Govindjee and David Jukes of the International Panel of ICC Match Referees, will also be officiating in the tournament.Shaun George and Ahsan Raza will be the on-field umpires for the match between defending champions West Indies and hosts New Zealand on the opening day at the Bay Oval in Tauranga, while Robert Bailey will be the TV umpire and Timothy Robinson the fourth umpire. David Jukes has been appointed as the match referee for this match.Umpire and match referee appointments for the knockout stages will be announced after the teams have been confirmed.The West Indies will be looking to defend their title and emulate Pakistan, who won consecutive titles in 2004 and 2006. Australia and India have each won the title three times while England and South Africa are the other teams to have won the tournament, which replicates a major tournament experience in terms of organisation and playing facilities.The other teams participating in the 16-team tournament are Afghanistan, Bangladesh, Ireland, Kenya, Namibia, New Zealand, Papua New Guinea, South Africa, Sri Lanka and Zimbabwe.The teams have been divided in groups of four. The top two sides from each group will advance to the Super League while the remaining eight teams will figure in the Plate Championship.The preliminary round matches will be followed by quarter-finals, semi-finals and final, plus the play-offs.